KIDNEY STORY: KAREN KECK

 

 

 

 

 

 

Darmstadt resident Lisa Keck, 49 is finally cleared by the Indiana Comprehensive Insurance Association for a kidney transplant.

 

 

 

The good news comes after follows intervention by Indiana State Sen. Vaneta Becker, R-Evansville and weeks of frustration for Keck in dealing with the insurer over several glitches, including proof that she was insured by the ICIA.

 

 

 

Now that the long, drawn-out ordeal is over, Keck said she is “thrilled to death.”

 

 

 

She said, “I thanked the Lord. It’s been a heck of a road in recent weeks.

 

 

 

“I told Kathy (Carnes, transplant coordinator at the Indiana University Transplant Center), ‘Get the donor. Get the doctor. I have insurance.’”

 

 

 

The transplant surgery is scheduled at the Indiana University Health Hospital-Indianapolis at 5:30 a.m. March 11.

 

 

 

Keck is scheduled to go there March 6 for presurgery blood work and to meet the donor, who wants to remain anonymous.

 

 

 

Keck’s case is unusual because her husband, Kerry, 51, has diabetes, like her and also needs a kidney transplant.

 

 

 

Both take dialysis: he four to five times a day at home and she three times a week at the Ohio Valley Dialysis Center.

 

 

 

Kerry Keck isn’t on a potential recipient’s list yet.

 

 

 

Sen. Becker said by phone from Indianapolis that she became involved in January after being contacted by a Keck family acquaintance.

 

 

 

In recent days, Keck became more frustrated by what she described as the runaround by ICIA.

 

 

 

Becker noted the irony was the ICIA is intended to be a state health care provider for people who have difficulty getting insurance

 

 

 

“It’s been such a time-consuming thing,” Becker said.

 

 

 

She said she most recently told the ICIA, “‘You know, it’s really past due to help this woman? She has the donor, but we don’t know for how long the donor will be willing to wait.’”

 

 

 

Becker said the case was expedited shortly after that.

 

 

 

“The insurance office gave its approval … I’m happy for Lisa that she can finally get this surgery done,” Becker said. “People shouldn’t have to call me, but I’m always glad to get involved if it’s necessary.”

 

 

 

Three other potential donors came forward, but were disqualified, since the Kecks’ story broke in Courier & Press last March 18.

 

 

 

If all goes well, Keck said, she will be able to return home about six days following the surgery.

 

 

 

The donor on average returns home within three to four days.

 

 

 

The transplant surgery for Keck is expected to take about four hours.

 

 

 

She then will be put on anti-transplant rejection medicines for the rest of her life.

 

 

 

Keck said will be OK with that.

 

 

 

Getting a transplant is no walk in the park. You just don’t receive it one day and go jogging the next day.

 

 

 

Close monitoring of Keck’s condition by IU will follow her surgery.

 

 

 

During her first month after the surgery, she will return to Indianapolis twice a week for checkups, then once a week in the second month and once every other week in the third month.

 

 

 

Thereafter, she will return to Indianapolis once a month for six months to a year.

 

 

 

Keck will also see an Evansville nephrologist regularly.

 

 

 

Her uncle and aunt, John and Joanie Phillips of Evansville, will drive her to and from Indianapolis this March.

 

 

 

http://www.courierpress.com/news/2013/feb/23/darmstadt-woman-finally-cleared-for-transplant/

 

 

 

https://www.facebook.com/KidneyStories 

 

 

 

KIDNEY STORY: A KIDNEY FOR PAUL STRATTON

 

About

Searching for kidney donor with o type blood.  Go here to help fund my transplant expenses. http://www.gofundme.com/uc2vg
Description
Hi! I am searching for a kidney donor to give me life. I found out I had kidney problems when I was 16. I was spilling excessive amounts of protein in my urine. Went to a kidney specialist in NY and discovered I only had one kidney. Back then my mom wouldnt let them biopsy my only kidney. We weren’t sure what was wrong but only that I had a kidney disease. Fast forward to 2001 or so I had a biopsy… done and found out I had focal segmental glomular sclerosis. FSGS for short. It was treated for some 10 years but in Jan of 2012 my PCP told me I was in end stage renal failure. I began hemodialysis in March. Hemo is a life saving procedure but it literally tethers you to a chair in a clinic 3 days a week for 4 solid hours. It’s hard on your heart and I have already seen decrease in muscle mass. Not to mention, I was having to get up at 3:45 am and work 11 hour days the other 3 days a week in order to make up hours lost from dialysis. Now, I’m doing dialysis at home and its a different type that’s gentler on my body. It is called peritoneal dialysis. I have so much more energy, plus I can work regular hours. I’m married to my wonderful wife Andy girl and have 5 beautiful grand kids . I enjoy working and want to avoid disability if I can. I am also active in search and rescue with my Golden Retrievers.   It is rewarding to help find someone’s missing loved one. When I was on the other type of dialysis, I was not able to train or go on searches. This coming March will be a year since I started dialysis. I am still waiting form my hero to share their spare please wont you share? I have a good heart, just not a good kidney. Please, please  consider sharing your spare and giving me my life back!! I plan to be active for many years. I am on the transplant list at Methodist in Dallas through the Dallas Transplant Institute. My coordinator Is Sandy Sanders. The number to the DTI is 214-358-2300.  My ID  is # 336122. Please review the link below for transplant funding, and share my page to allow more exposure to help save my life! Thank you and God Bless!!! P.S I live in Texarkana, AR for those who live out of the USA.

KIDNEY STORIES: FIND A KIDNEY FOR WENDY

Hoping to find a kidney for transplant.
Description

I have Polycystic Kidney Disease, a dominant gene disease, and am close to needing dialysis or a kidney. I was born and raised in Maine and have lived here most of my life. I am O+ so need either an O kidney or a paired donor. I am lucky enough to still be able to work full time, maybe it’s those Maine genes, but I hope to get a transplant soon. My general health is excellent so my body should be a good home for a kidney. My doctors like to see people go direct to transplant, avoiding dialysis. I have two children, four grandchildren. My transplant center is: Maine Transplant Center 19 West Street Portland, Maine 04102 (800) 870-5230 (207) 662-7180

https://www.facebook.com/pages/Find-a-Kidney-for-Wendy/492170444163648?sk=info

https://www.facebook.com/KidneyStories

Hoping to find a kidney for transplant.
Description

I have Polycystic Kidney Disease, a dominant gene disease, and am close to needing dialysis or a kidney. I was born and raised in Maine and have lived here most of my life. I am O+ so need either an O kidney or a paired donor. I am lucky enough to still be able to work full time, maybe it’s those Maine genes, but I hope to get a transplant soon. My general health is excellent so my body should be a good home for a kidney. My doctors like to see people go direct to transplant, avoiding dialysis. I have two children, four grandchildren. My transplant center is: Maine Transplant Center 19 West Street Portland, Maine 04102 (800) 870-5230 (207) 662-7180

https://www.facebook.com/pages/Find-a-Kidney-for-Wendy/492170444163648?sk=info

https://www.facebook.com/KidneyStories

KIDNEY STORIES: HELP BECKY FIND A KIDNEY

Dedicated to finding a kidney donor for Becky Kelly. I am 59 and have atypical Hemolytic Uremic Syndrome (aHUS).I am on dialysis.

Description
    Dedicated to finding a kidney donor for Becky Kelly. I am 59 years old and have atypical Hemolytic Uremic Syndrome (aHUS).I am on dialysis which now my life revolves around. I have two wonderful children who are unable to donate. I am also the grandmother of a beautiful little girl named Becca. She is 4 years old. I have a lot of life left to live and I am hoping to find an O kidney donor soon…. Interested donors can contact the Methodist Hospital Referral Center at             713-441-5451       or             713-441-8900      . Tell them you are calling to be tested for Rebecca Kelly.      Unlike · · Follow Post · February 8 at 1:12am
Show support for the work you’ve done setting up your Page by liking it. When people visit

Dedicated to finding a kidney donor for Becky Kelly. I am 59 and have atypical Hemolytic Uremic Syndrome (aHUS).I am on dialysis.

Description
    Dedicated to finding a kidney donor for Becky Kelly. I am 59 years old and have atypical Hemolytic Uremic Syndrome (aHUS).I am on dialysis which now my life revolves around. I have two wonderful children who are unable to donate. I am also the grandmother of a beautiful little girl named Becca. She is 4 years old. I have a lot of life left to live and I am hoping to find an O kidney donor soon…. Interested donors can contact the Methodist Hospital Referral Center at             713-441-5451       or             713-441-8900      . Tell them you are calling to be tested for Rebecca Kelly.      Unlike · · Follow Post · February 8 at 1:12am
Show support for the work you’ve done setting up your Page by liking it. When people visit

KIDNEY STORIES: TRANSPLANT BUDDIES

Transplant Friends.com is the social network to our sister site  http://transplantbuddies.org which was created Feb. 12th 2000. We launched our first forum in Dec of 99 “The Transplant Sharing Exchange” by Boardhost.com and saw there was an invaluable purpose for communication within the transplant community.  We added several other message forums and then added the domain transplantbuddies.com (2/12/2000) to serve as the main destination place for all the forums.

 

Since the begginning in 2000, our members returned often, invited their friends and more specific categories were added.   The members who visit often include:  pre & post transplant patients, caregivers, donor families, living related organ donors, altruistic donors,  all who have become an intergral part of this journey with us.

Photos of Our Members on TransplantBuddies

Art Work from our TransplantBuddies

TransplantBuddies Forum Archives 2003-2012

July-29-Nov 19-2012 Forum Archive TransplantBuddies

 

In 2010, with the popularity of social network sites, we felt it was for our members best interest to have another type of  social application available.  Transplant Friends.com was created from the social website designed by http://ning.com

 

Our mission is to provide unique and personal points of views for those who are traveling down the road to transplant.   Join us and be a shinning light that will help lead our friends through their difficult times.

Share, Learn, Encourage and Explore with us.

 

Warm Regards,

Risé Pine

site creator

Feel free to invite your Friends to join us

 

Contact

transplantfriends@gmail.com

KIDNEY STORIES: QUEST FOR A KIDNEY

The Search for a Living Kidney Donor for my Mom. She is Blood Type O and is looking for a potential O+ or O- donor!
Description
We are searching for potential living kidney donors that may be a possible match for my Mom. If you would like to learn more about being a living donor, or are interested in being screened to determine if you are a potential match, please contact us here via a wall post or message. You can also contact the Sacred Heart Transplant Center in Spokane, Washington to request a potential donor’s packet …at 1 (800) 667-0502. Prayers and thoughts are also appreciated.
Lois lives in Washington State, is 52 years old, and has been in complete renal failure for a few years now. She has been doing dialysis for a year and a few months now, but her access ports to continue dialysis are running out. She is a wonderful mother of 2 children and is an active part of her small town community in Eastern Washington State.
Her story can be found on the wall of the page in which she shares the details of the journey that has brought her to this point. We welcome all comments, “likes,” “shares,” and any and all who may be interested in being screened as a potential donor. Thanks and God Bless!

The Search for a Living Kidney Donor for my Mom. She is Blood Type O and is looking for a potential O+ or O- donor!
Description
We are searching for potential living kidney donors that may be a possible match for my Mom. If you would like to learn more about being a living donor, or are interested in being screened to determine if you are a potential match, please contact us here via a wall post or message. You can also contact the Sacred Heart Transplant Center in Spokane, Washington to request a potential donor’s packet …at 1 (800) 667-0502. Prayers and thoughts are also appreciated.
Lois lives in Washington State, is 52 years old, and has been in complete renal failure for a few years now. She has been doing dialysis for a year and a few months now, but her access ports to continue dialysis are running out. She is a wonderful mother of 2 children and is an active part of her small town community in Eastern Washington State.
Her story can be found on the wall of the page in which she shares the details of the journey that has brought her to this point. We welcome all comments, “likes,” “shares,” and any and all who may be interested in being screened as a potential donor. Thanks and God Bless!

KIDNEY STORIES: FIND A KIDNEY LOVE DENA

The purpose of this page is to promote awareness for all those suffering with Chronic Kidney Disease (CKD/ESRD) and to find a much needed Kidney transplant for myself.
Description

Having CKD for over 14+ years has taken a huge toll on my life. After my first life saving transplant, in 2002, didn’t work I returned to dialysis in 2008 and now looking for another kidney. I’m type O- blood. I live the in Albany NY area and my transplant center is Albany Medical Center. You can contact me via Facebook or email at kodabear1@nycap.rr.com… SAVE A LIFE **SHARE YOUR SPARE**

KIDNEY STORIES: MIRACLE FOR BLAKE

To find out if you are a match for Blake, please fill out the Health Questionnaire and Application in this link: http://www.uchospitals.edu/specialties/transplant/kidney/donate.html

Mission Our mission is to have as many people as possible share Blake’s story so we can find him a kidney match. Blake’s blood type is O+. If you have any form of O Blood type and are interested in donating please fill out the Health Questionnaire and Application in this link and make sure to put Blake Loudenber as the recipient you want your kidney to go to: http://www.uchospitals.edu/specialties/transplant/kidney/donate.html Blake’s insurance will cover the procedure for the donor as well as before and after Doctor appointments.

Description Blake is a 9 year old boy from Griffith, Indiana who has been waiting for his second kidney transplant for 8 years. He was born with polycystic kidney disease and has been on dialysis since he was 3 weeks old. If he does not receive a kidney immediately he will be stuck at the size of a five year of for the rest of his life. His condition is life threatening and this sweet little boy has not been able to have a normal life, let alone childhood, due to his debilitating disease. Blake’s story on CNN iReport: http://ireport.cnn.com/docs/DOC-927035

General Information

These are links to articles about Blake from our local newspaper The Northwest Indiana Times: http://www.nwitimes.com/news/local/lake/griffith/griffith-boy-still-waiting-for-kidney/article_9557edee-7174-5156-8d30-d8027b977ae2.html http://www.nwitimes.com/news/local/lake/griffith/griffith-boy-s-story-leads-to-surge-in-organ-donor/article_eabfa3b4-c953-5ede-aee9-aa5350e783c5.htmlhttp://www.nwitimes.com/niche/get-healthy/healthy-living/famly-hosts-fundraiser-for-griffith-boy-waiting-for-a-kidney/article_99d151d5-641f-551c-8e97-15aabaf2a834.html http://www.nwitimes.com/niche/get-healthy/newsletter-featured-health-care/griffith-boy-s-kidney-wait-reaches-fifth-year/article_7eea7ba3-f875-5d1b-af0d-d3acd3f6a59a.htmlSee More

 

 

 

 

 

 

https://www.facebook.com/KidneyStories?filter=2

KIDNEY STORIES: KIDNEY FOR JYOTI AMIN

 

Become a living donor for Jyoti!                                     http://piedmonthospital.org/PH/KidneyTransplantation.aspx
Description
Jyoti is my wife.  We live in Atlanta, GA.  She has been on dialysis since February 2010 and has been on a transplant list for about one year.  I attempted to donate but was disqualified due to health reasons.  All I can do for her now is to spread the word and hope for a donor. Her best hope is for a living donor. Jyoti is a wonderful, loving, and caring person.  She deserves a chance to live a q…
uality life.  She has always been a firm believer of organ donation and has aspired to do the same for others.
Her blood type is O+ The transplant surgery would take place at Piedmont Transplant Institute in Atlanta, GA.  We will cover any travel expenses for the donor. The surgery would be done laparoscopically, which means minimum risk and recovery time for the donor. The donor does not have to cover any of the costs of surgery.  The cost of the transplant surgery is covered by her insurance.
Please help us by passing along this message about her situation.  I know I am asking for a lot but it would be so rewarding to give another the gift of life.
Thank you for your time and consideration!

KIDNEY STORIES: AMY NEEDS A LIVING KIDNEY DONOR

Amy suffered from Polycystic Kidney Disease (PKD). Her kidneys were removed in 2006. She’s been on the waiting list for a donor kidney for nearly 9 years, on dialysis nearly 11, needing an angel donor with BLOOD TYPE 0.

Description
Amy suffered from Autosomal Dominant Polycystic Kidney Disease (ADPKD),  the most frequent life-threatening, hereditary disease.  Amy was diagnosed with PKD at the age of 21.  She married her sweetheart and raised a family of five children including a set of twins.  Their sons are serving in the military.  They now have 9 grandchildren.  Due to damaged kidneys from this disease she went into Stage… 5 kidney disease or End Stage Renal Failure requiring dialysis to live which is equal to daily life support.
She has been on dialysis nearly 11 years (started dialysis at age 44) and on the deceased donor list for nearly 9 years has never had a transplant.  By the numbers she has had so far approximately 3000 treatments lasting more than 24,000 hours over the years.  She has had more than 13 major surgeries and 75 procedures.  She is running out of veins to use for dialysis.  She is still young (just turned 54) and has so much left to do, see, accomplish. Amy needs a kidney transplant as soon as possible. Once she receives a healthy kidney, her chances for a full recovery and healthy, long life increase drastically. With so many people waiting for a transplant (currently 93,000 waiting for a kidney) finding a living donor is the best option!
Amy and her family live in southwest Missouri, USA and she is currently listed at KUMC Transplant center in Kansas City Kansas.
The following are the most important things to know about organ donation.
* Most people are born with 2 kidneys. Studies show that kidney donors live a normal, healthy life with only one kidney and are no more likely to suffer kidney failure. To read a study from the “New England Journal of Medicine” about kidney donors’ health after their transplant, go to: www.lkdn.org/Long_Term_Effect_Kidney_Donors_Health.pdf An interesting fact to realize is 1 in every 750 people are born with one kidney and their life expectancy is the same as someone who is born with 2 kidneys.
* As a result of new anti-rejection drugs, the “matching” of donor/recipient has become much easier. For situations where the donor/recipient are not compatible, “kidney paired exchange” programs allow these donors to be paired and matched with other incompatible pairs. To learn more about the matching process go to: www.lkdn.org/LKDN_Matching.pdf For more information about kidney paired exchanges go to: www.lkdn.org/LKDN_Paired_Exchanges.pdf
* Organ donors need to be in good health, without high blood pressure, diabetes, kidney, heart, liver or other major health issues. For more details on donor qualifications go to: www.lkdn.org/who_can_be_living_donor.html
* Donating a kidney involves a major surgical procedure and the donor is usually in the hospital 1-3 days. The recuperation period is anywhere from 14-21 days for those with an office job, and about 6 weeks if the individual’s work entails more physical labor. The majority of the procedures are done laparoscopically, with 3-4 small holes for the instruments. A small incision is made to remove the transplanted kidney.
* Medical expenses relating to the transplant are completely paid by the recipient’s insurance company.
In 2005 Amy suffered a severe and life-threatening blood infection (sepsis).  This left her suffering from what is known as hemolysis and needing 11 blood transfusions.  The transfusions drastically increased her antibody levels which make her a very very difficult match.  While others at her transplant center typically only wait about 2 years before receiving a deceased donor organ, Amy has been waiting 8 years and still no transplant.  Amy has also gone through what is known as IVIG therapy numerous times in an effort to lower her antibodies and enable her to be a better match for a donor organ.  She is still a tough match.
Amy started out on in-center dialysis and after about 8 months switched over to home hemodialysis with her loving husband as a care partner.  She has been doing home hemodialysis for over 9 years and has had numerous surgeries, procedures etc.  She just lost her 10th arm access for hemodialysis.  She recently had a PD (peritoneal dialysis) catheter placed in her belly to try and do home dialysis using the peritoneum in her abdomen.  After just a few weeks it was evidently not working (another hospital stay) and she is back on home hemodialysis.  Amy and her family are praying and hoping this dialysis will last her long enough to find a donor organ and be dialysis free. She has endured countless procedures, surgeries and “hiccups” along her journey, including another infection requiring hospitalization in May 2012 – that will make her 5th bout of MRSA sepsis.
Diabetes is the #1 cause of needing dialysis in the U.S., with high blood pressure the #2 cause.  An estimated 100,000 people join the ranks of dialysis patients each year, yet the number of those remaining on dialysis remains the same due to the high mortality rate.  If more people signed an organ donor card or stepped forward to donate blood, bone marrow, tissue and organs like kidneys while still living so many more lives could be saved and those waiting (the current 93,000 for kidneys) would be able to live longer, healthier lives.
If you are interested in donating for/to Amy or anyone else remember that just a few days in the hospital for you could give Amy or another person waiting 15 or more years of dialysis free living. You must have blood type O (for Amy)and be in good health.
Amy’s transplant coordinator is at
University of Kansas Medical Center Transplant center Tham Hoffman 913-588-5049 email jhoffman@kumc.edu
Even if you don’t match Amy you could be a match for one of the other 93,000 waiting on the deceased donor list in the United States and could be a life-saving option for someone else.  While you are at it, PLEASE like her page and spread the word about living organ donation and especially help Amy fulfill her dreams and wishes.  Thank you kindly.  Blessings & Peace,
http://donatelife.net/ http://www.lkdn.org/ http://www.unos.org/ http://www.transplantliving.org/living-donation/facts/ http://kidneyschool.org/ http://homedialysis.org/ http://www.kidney.org/ http://www.aakp.org/ http://www.kidneyfund.org/ www.pkdcure.org